Addressing Research in Type 1 Diabetes
The Address research study began 9 years ago and Address 2 started 6 years ago. Nationally during that time, over 6,000 have joined the study; with more than 5000 diagnosed with type 1 diabetes and approximately 1,000 siblings also joining the study. Over half that joined were children when diagnosed (aged 5-16 years) and nearly as many diagnosed in adulthood.
It is known that type 1 diabetes can be diagnosed at any age, but it is still often thought of as affecting more children and young adults. Out of those who had agreed to participate in the study 20% were over the age of 30 when diagnosed.
All the information collected and the blood samples donated from participants are being used to learn more about type 1 diabetes, soon after diagnosis, in modern and diverse Britain.
How Address and Address-2 helps with other Diabetes Research Studies
An important part of Address / Address 2 involves letting participants know about other type 1 diabetes research studies they may be eligible for and how they can join if they are interested.
Since 2011 there have been 22 studies that participants have been matched to. These have mainly involved adults with type 1 diabetes. There are a few studies involving children with type 1diabetes that started this year and soon they will be contacting some siblings too.
When someone is matched to a study, they are sent information explaining what is involved. If they express an interest in joining, then they are put in contact with the research team running that specific study.
For more information about other type 1 diabetes research studies visit: www.address2.org/type1-diabetes-study
The Address-2 Patient Advocate Group are looking for volunteers
Do you want to help improve how Address 2 is run?
Address-2 have formed a group of people with type 1 diabetes and parents of children with type 1 diabetes who give advice and input into how the study is run.
The group has a particular focus on communication and engagement with people living with type 1 diabetes and with health care professionals.
They are now looking for more volunteers to join the group which works by communication via email with occasional face to face meetings.